I am writing this from my bedroom — trapped. Like a character in a movie. Or Jim Gaffigan when he…
Bailey Anne Vincent
Bailey is a scar positive, signing, Deaf storyteller and professional dancer, who believes etiquette, work ethic and role modeling matter as much to a role as just inhabiting a part. As a disabled choreographer, director, music supervisor, and actor, she has spent the last 8 years running a company called Company Dance Theatre on the east coast: the first body neutral, large scale company in the US. But she’s also been a journalist, columnist and novelist for almost three decades, in addition to the trials and tribulations of motherhood. As a formally misdiagnosed mutant, she hopes to raise awareness of atypical CFTR disease and help anyone who isn’t genetically in the black or white feel less alone. For more on her activism or art, please see www.catchingbreaths.org.
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Articles by Bailey Anne Vincent
I just had surgery again, and now more people will follow me. I don’t want to write about the…
This is what I need. I’m going to tell you instead of my doctors, because that’s the life of a…
“I am sick of being a woman,” I say far too often. “Especially a sick one.” Maybe you’ve read this…
Chadwick Boseman is dead, and I’m going to write about it. He has been dead for seven months now,…
I am staring at a blank page trying to figure out what to write, and all I want to say…
Because we just honored Rare Disease Day on Feb. 28, I’d like to share what it’s like living with…
“I am so happy right now,” I say to my partner as we set off on a drive on an…
It’s 10:25 a.m. and all I’ve had is coffee. Last week, I wrote about my struggles with cystic fibrosis-related…
I went to bed hungry last night, and I woke up scared of food. This is my new reality. Although…