Columns

Transplant anniversaries are hard for me. And they’re wonderful. They’re sad, then great again. Up, down, and all around seems to be the cycle of my emotions. These anniversaries affect my body, too. It’s as if I’m reliving the days leading up to my transplant all over again. I…

“I’m worried about your health.” I have heard this more times than I can count. It’s normally a guise for criticism of how I’m eating, how I approached my pregnancies, or how I look. For a long time, I tried to appreciate the concern. That’s how we show love, right?…

Being a parent sucks sometimes. We talk about how we “don’t talk about this enough,” but then we sort of do through rose-colored glasses and funny and frustrated columns such as these. “How come you never write honestly about what it’s like to be a sick person raising kids?”…

“I wish I had that problem!” If you’re pancreatic insufficient, you know what that dreaded joke is in response to. Gaining weight ain’t easy when your pancreas doesn’t function properly, your lungs and heart pump much too rapidly, and you’re slammed by side effects like appetite loss or nausea.

After a monstrous letdown, we need a win. Those of us with chronic illness need reminders to keep on keeping on. The glimmer of hope for better days is necessary to move forward. Rarely do we have a whole day that is good, so when we do, we cling…

I have gained weight. I’ve been trying to gain weight for years, kindly encouraged by my CF clinic. Many might find it odd that aiming for a mid- to upper-range BMI is a goal for the chronically ill, especially in a world rife with diet culture and diminutive proclivities. But…

This is my back. (Courtesy of Bailey Anne Vincent) My back is old. I’m not old … but my back is. Or at least that’s what my radiologist said after reviewing CT scans of a recent myelogram, in which serious degeneration raised cause for alarm. I…

Dear Chronically Ill Professional, You are enough. It’s easy to look around and compare yourself to your peers. Maybe you didn’t get that promotion because you were sitting in doctors’ appointments instead of working overtime. Perhaps you aren’t living that “hustle” lifestyle because you need to slow down and…

Privilege. Everywhere we look, we see the word privilege, and it’s hard not to feel attacked or defensive for what we feel we can’t control, right? Poor me and my white, thin, cisgender body. It really is so hard to be misunderstood! To be clear, that was sarcasm. And to…

I open my eyes, and the walls around me blur like a mirage. I whisper through my post-intubated raw throat: “Did it work?” My nurse replies: “No, they weren’t able to fix the problem.” Preliminary tears well up in my anesthesia-drunken stupor. She must be lying, I think…