Columns

Reflecting on the Passage of Time

Last week led me to reflect on how things change with time. Looking back on the obstacles I have overcome and the stepping stones navigated help me to appreciate the present. Last Wednesday I drove home from a checkup at Duke University in Durham, North Carolina. My lung function was…

This Is What Makes Me Rare

It probably won’t come as a shock if I say that growing up with cystic fibrosis is confusing for one’s identity. Cystic fibrosis requires a huge time commitment and affects most areas of our lives. We can choose to hide it, which probably isn’t the best idea, because then…

Important Breaking News: I Am Not You

I’m going to talk about something other than sickness for a second. But stay with me, because I’m coming back to that, too. By the time you read this, the Oscars will be a week behind us. A South Korean film named “Parasite” will have won best picture. And likely…

It’s Time to Live Slowly

I haven’t tasted much energy over the past month. Thanks to steroid withdrawal, I spend most of my time near home. It’s not all that bad, honestly, to sit around and do nothing. “Doing nothing” can be productive. I didn’t always feel that. Back in my pre-transplant days, I…