I miss someone. I don’t even know her … and yet I miss her. I miss the person I do…
Bailey Anne Vincent
Bailey is a scar positive, signing, Deaf storyteller and professional dancer, who believes etiquette, work ethic and role modeling matter as much to a role as just inhabiting a part. As a disabled choreographer, director, music supervisor, and actor, she has spent the last 8 years running a company called Company Dance Theatre on the east coast: the first body neutral, large scale company in the US. But she’s also been a journalist, columnist and novelist for almost three decades, in addition to the trials and tribulations of motherhood. As a formally misdiagnosed mutant, she hopes to raise awareness of atypical CFTR disease and help anyone who isn’t genetically in the black or white feel less alone. For more on her activism or art, please see www.catchingbreaths.org.
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Articles by Bailey Anne Vincent
Today I had a meltdown. I don’t like to think of myself as someone who has “meltdowns,” but lately they…
At this time last week, I was crying. I was crying because I didn’t “want to let them down.” The…
What to Do When Everyone Dies
Two of my friends are dead. And I’m scared. Recently, I lost two friends on the same day. One was…
9 a.m. I should be starting my day with the smoothie bowls that are stocked in my freezer. You can…
Sorry Not Sorry That I’m Sick
I’m sorry. I’m sorry for being sorry. Do you ever feel like all you do is apologize? It’s what I…
Chronic illness can feel like a competition. It can become a game of “who has the most badges,” like “…
I might break up with my CF clinic. It’s not them, it’s me. They are doing a good job. My…
Our Colons Need Your Help
This column is about colons. Someone needs to be studying the prevalence of colorectal conundrums in people with CF and…
I’m going to say something many people won’t like: I struggle with the word “disability.” In the eyes of society,…