Bailey Anne Vincent,  —

Bailey is a scar positive, signing, Deaf storyteller and professional dancer, who believes etiquette, work ethic and role modeling matter as much to a role as just inhabiting a part. As a disabled choreographer, director, music supervisor, and actor, she has spent the last 8 years running a company called Company Dance Theatre on the east coast: the first body neutral, large scale company in the US. But she’s also been a journalist, columnist and novelist for almost three decades, in addition to the trials and tribulations of motherhood. As a formally misdiagnosed mutant, she hopes to raise awareness of atypical CFTR disease and help anyone who isn’t genetically in the black or white feel less alone. For more on her activism or art, please see www.catchingbreaths.org.

Articles by Bailey Vincent

Does Everyone With CF Have Body Dysmorphia?

I have gained weight. I’ve been trying to gain weight for years, kindly encouraged by my CF clinic. Many might find it odd that aiming for a mid- to upper-range BMI is a goal for the chronically ill, especially in a world rife with diet culture and diminutive proclivities. But…

Why Am I So Ashamed of Chronic Pain?

I have never liked the term “chronic pain.” Or at least I never used to identify with it. To me, chronic pain was something hashtagged online for those who don’t know why their body is hurting or how to “handle it.” Chronic pain is for people who get reiki and…

I Need to Give Up on Giving Up

Sometimes I want to give up. This is awful to say and even sillier to admit. But it’s something I’ve been repeating more and more lately. Someone recently asked me for “tips on staying mentally tough,” and I wanted to reply, “I’m not.” Not right now, anyway. I constantly feel…

We Need Better Representation in the CF Community

As a health writer, I hesitate to cover topics that don’t fit directly into my “brand” because it’s bad business. I’ve cared about human rights for as long as I’ve been a human, but “sticking to my lane” means medicine, motivation, and myopic magnifications of my own fragile frailty (physically…

Death Is Not a Good Diet Plan

If I die from anything, it’s going to be food. I have gone without food for long periods of time. It’s something many people with cystic fibrosis or other chronic illnesses know too well. After my fundoplication surgery in 2015, I couldn’t eat anything denser than pudding while the swelling…