“My gut is the source of most of my sickness.” I say this a lot. I say it to explain…
Bailey Anne Vincent
Bailey is a scar positive, signing, Deaf storyteller and professional dancer, who believes etiquette, work ethic and role modeling matter as much to a role as just inhabiting a part. As a disabled choreographer, director, music supervisor, and actor, she has spent the last 8 years running a company called Company Dance Theatre on the east coast: the first body neutral, large scale company in the US. But she’s also been a journalist, columnist and novelist for almost three decades, in addition to the trials and tribulations of motherhood. As a formally misdiagnosed mutant, she hopes to raise awareness of atypical CFTR disease and help anyone who isn’t genetically in the black or white feel less alone. For more on her activism or art, please see www.catchingbreaths.org.
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
Articles by Bailey Anne Vincent
I had an experimental stem cell transplant five years ago and it was one of the best things I’ve ever…
I’m going to say something that not everyone wants to hear: Just because we are sick doesn’t mean we get…
I’m going to talk about something other than sickness for a second. But stay with me, because I’m coming back…
I compare myself to other people. I shouldn’t, but I do. Sometimes, other people seem nervous to compare themselves to…
“You don’t look Deaf.” This is something I’ve been told while my best friend — who is hearing — was…
I don’t have anything to write. I don’t have anything to write because I don’t have anything left inside of…
I Want to Quit the Internet
I want to quit the internet. This is something I think about a lot. The more I share, the more…
What’s inside me is more than just bones. It’s more than machinery invading foreign lands. Or darkness where organs used…
I am one of the 10 percent. The 10 percent cannot take the new, groundbreaking medication that will hopefully help…