Columns

The Kind of Friend We Deserve

When I met Alexander, he was thin, his nose bled a lot, and he had tubes in his ears. I was a lonely first-grader fresh to Hawaii, and just as thin and malfunctioning as the brother I didn’t yet know. How could I ever adequately thank the teacher…

The Resiliency of the Human Spirit

Few phenomena fascinate me more than human happiness. So often we get caught up in the idea that we would be happier if so-and-so happened. I’m sure I won’t be the first to tell you that the grass ain’t always greener on the other side. This idea is known as…

Can We Talk About CF Pain?

We need to talk about pain. Growing up, there was a clear delineation in my mind: Cystic fibrosis (CF) could be painful sometimes, but it wasn’t a disease that caused constant pain. It was almost a mantra in my mind: “At least I’m not always…

I’m Worried Sick About My Family

At night I lie awake and I worry about you. I worry if you’ll drive home safely that night. If the ache in your chest is really a ticking time bomb, rather than a proton pump inhibitor problem known by most. I worry because I love, and I love…

Why the CF Community Should Be Concerned About Climate Change

Climate change is an emergency facing humanity. As we continue to burn fossil fuels and release greenhouse gases, solar heat levels build up in the atmosphere, which acts as an incubator, causing our planet to get hotter. Some populations will be more severely affected by climate change than others…