I am going to write something no one wants to hear: Honesty is best when it’s pretty. Sometimes I am that person. I can smile through the suffering. I can point my toes while pieces are ignored. I can pretend that the realities of fighting for this life aren’t less…
Life in the Grey – a Column by Bailey Anne Vincent
I am in a bathroom feeling sick, writing about being sick, not wanting to be sick. I don’t want this to be my life or what I’m writing about. I get sick of saying it. You must get sick of reading it, or associating me with it, or scrolling…
Staying 6 feet apart is not new to me. It’s not new because I have atypical cystic fibrosis and have been doing it for years. Most people know about this rule by now. They’ve either lived it, heard it (backwashed in this very column), or seen it in a…
Today, I woke up and left for a doctor’s appointment. It was 8 a.m., and my eldest daughter was coming with me in case I needed an interpreter. I’m Deaf and fluent in American Sign Language (ASL), but I cannot read lips with all the masks, so we took this…
Who would I be if I lost the parts of me that make me … me? At the height of my back pain — which is off in the old place, on in the new — I can’t sit up for long stretches to write, or stretch myself to…
I don’t want to write this column. OK, for the sake of my editors, let’s be clear: I love this column and this company and this job. I am so lucky to have it, and I honestly can’t imagine how I’d get through parts of life without a consistent…
Yes, sickness is giving me a panic disorder. Let me explain. No, there is too much. Let me sum up: Never knowing exactly what to do or who to call or what the protocol is with every new symptom, in a body that creates new symptoms annually, makes me long…
I don’t know if I believe in miracles. I know that what makes a miracle miraculous is its infrequency and lack of scientific reason, but I often wonder: How come some people deserve them while others suffer relentlessly? For anyone who doesn’t know a lot about cystic fibrosis treatment, a…
I am never going to be well enough to work out. I realized this the other day and said, “I am never going to feel well enough to do this.” And then I wrote it as the first sentence of this column. I am back to working out, for the…
“I don’t feel well.” I used to say this all the time. I said it before my last round of IV antibiotics and sinus surgery at the beginning of the year. I said it before being sheltered in the same dang place, thus having much less exposure to the…
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