If I were a doctor, I would say hello and ask a couple questions about the individual first. That way,…
Bailey Anne Vincent
Bailey is a scar positive, signing, Deaf storyteller and professional dancer, who believes etiquette, work ethic and role modeling matter as much to a role as just inhabiting a part. As a disabled choreographer, director, music supervisor, and actor, she has spent the last 8 years running a company called Company Dance Theatre on the east coast: the first body neutral, large scale company in the US. But she’s also been a journalist, columnist and novelist for almost three decades, in addition to the trials and tribulations of motherhood. As a formally misdiagnosed mutant, she hopes to raise awareness of atypical CFTR disease and help anyone who isn’t genetically in the black or white feel less alone. For more on her activism or art, please see www.catchingbreaths.org.
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Articles by Bailey Anne Vincent
“Is this what I’m going to do forever?” I asked my dad. We were waiting outside a lab that hadn’t…
To the Doctors Who Didn’t Listen
To the doctors who didn’t listen to me: You were wrong. I remember the time I arrived in the ER…
I am having trouble sleeping. Everywhere we look, it feels like the world is on fire (both figuratively and literally).
If I die, will it make you better? This is the storyline that appears in almost every movie ever made…
One of the hardest things to deal with in life are the “unknown knowns.” This is what happens when you’ve…
“I want to take my mask off.” I said these words to my daughters two days ago in a Barnes…
“Do you have an advance directive?” This is something most of us with CF have been asked before. For someone…
“I’m worried about your health.” I have heard this more times than I can count. It’s normally a guise for…
Being a parent sucks sometimes. We talk about how we “don’t talk about this enough,” but then we sort of…