I am going to write something no one wants to hear: Honesty is best when it’s pretty. Sometimes I am…
Bailey Anne Vincent
Bailey is a scar positive, signing, Deaf storyteller and professional dancer, who believes etiquette, work ethic and role modeling matter as much to a role as just inhabiting a part. As a disabled choreographer, director, music supervisor, and actor, she has spent the last 8 years running a company called Company Dance Theatre on the east coast: the first body neutral, large scale company in the US. But she’s also been a journalist, columnist and novelist for almost three decades, in addition to the trials and tribulations of motherhood. As a formally misdiagnosed mutant, she hopes to raise awareness of atypical CFTR disease and help anyone who isn’t genetically in the black or white feel less alone. For more on her activism or art, please see www.catchingbreaths.org.
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
Articles by Bailey Anne Vincent
I am in a bathroom feeling sick, writing about being sick, not wanting to be sick. I don’t want this…
Staying 6 feet apart is not new to me. It’s not new because I have atypical cystic fibrosis and have…
Today, I woke up and left for a doctor’s appointment. It was 8 a.m., and my eldest daughter was coming…
Who would I be if I lost the parts of me that make me … me? At the height of…
I don’t want to write this column. OK, for the sake of my editors, let’s be clear: I love…
Yes, sickness is giving me a panic disorder. Let me explain. No, there is too much. Let me sum up:…
I don’t know if I believe in miracles. I know that what makes a miracle miraculous is its infrequency and…
I am never going to be well enough to work out. I realized this the other day and said, “I…
“I don’t feel well.” I used to say this all the time. I said it before my last round of…