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	<title>Cystic Fibrosis News Today Forums | Bailey Vincent | Activity</title>
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				<title>Bailey Vincent started the discussion Sharing Some BIG News (Eek) in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/sharing-some-big-news-eek/</link>
				<pubDate>Mon, 25 Oct 2021 17:33:57 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/sharing-some-big-news-eek/">Sharing Some BIG News (Eek)</a></p> <div class="bb-content-inr-wrap"><p>Hello forum friends.</p>
<p><strong>Well, I have some pretty major news.</strong> I am going to be taking a brief winter hiatus from the forum&#8230; and I&#8217;m going to miss you all so much.</p>
<p>The good news is that it&#8217;s a positive hiatus (is there such a thing?) as my girls and I will be traveling for a professional dance gig for a temporary contract (you can see more&hellip;<span class="activity-read-more" id="activity-read-more-5563"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/sharing-some-big-news-eek/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion Getting My Booster and Want Advice/Information Please! in the forum COVID-19 and CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/getting-my-booster-and-want-advice-information-please/</link>
				<pubDate>Wed, 20 Oct 2021 16:05:31 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/getting-my-booster-and-want-advice-information-please/">Getting My Booster and Want Advice/Information Please!</a></p> <div class="bb-content-inr-wrap"><p><strong>I am getting my booster/third shot tomorrow, as well as my flu shot, right before I head off to dance for a few hours, and then have dance again the next day. </strong></p>
<p>I work everyday this week and it only gets worse from there (stage week is less than two weeks away), so I don&#8217;t really have a &#8220;down day&#8221;, unfortunately, to make room for resting if I&hellip;<span class="activity-read-more" id="activity-read-more-5549"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/getting-my-booster-and-want-advice-information-please/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent wrote a new item</title>
				<link>https://cysticfibrosisnewstoday.com/forums/?p=17590</link>
				<pubDate>Tue, 19 Oct 2021 19:36:43 -0500</pubDate>

									<content:encoded><![CDATA[<p>I am on a nostalgia kick. </p>
<p>I know I&#8217;m not alone. Lately it seems like, everywhere I look is another 90&#8217;s reboot, or a media wink-and-a-smile to a previous decade (that reference was a Harry Connick nod, [&hellip;] <img src="https://cysticfibrosisnewstoday.com/forums/wp-content/uploads/2021/04/shutterstock_243577255.jpg" /></p>
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				<title>Bailey Vincent started the discussion Throw It Back With Me (Help. I&#039;m Stuck in the 90s) in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/throw-it-back-with-me-help-im-stuck-in-the-90s/</link>
				<pubDate>Tue, 19 Oct 2021 19:36:43 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/throw-it-back-with-me-help-im-stuck-in-the-90s/">Throw It Back With Me (Help. I'm Stuck in the 90s)</a></p> <div class="bb-content-inr-wrap"><p><img src="https://cysticfibrosisnewstoday.com/forums/wp-content/uploads/2021/04/shutterstock_243577255.jpg" alt="" width="1000" height="667" /></p>
<p><strong>I am on a nostalgia kick. </strong></p>
<p>I know I&#8217;m not alone. Lately it seems like, <em>everywhere</em> I look is another 90&#8217;s reboot, or a media wink-and-a-smile to a previous decade (that reference was a Harry Connick nod, just FYI), and on and on. And as cliche as it makes me: I LOVE it.</p>
<p>Leaning in to things that once felt new and now feel&hellip;<span class="activity-read-more" id="activity-read-more-5546"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/throw-it-back-with-me-help-im-stuck-in-the-90s/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5543/#acomment-5544</link>
				<pubDate>Tue, 19 Oct 2021 19:00:12 -0500</pubDate>

									<content:encoded><![CDATA[<p>I just avidly read it and&#8230; I am in love with your love and that entire post!!! </p>
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					<a href="https://cysticfibrosisnewstoday.com/forums/members/jpaul/" data-bb-hp-profile="331" rel="nofollow">Paul met Debbie</a> replied to the discussion <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/the-quickest-hello/" rel="nofollow">The Quickest Hello</a> in the forum <a href="https://cysticfibrosisnewstoday.com/forums/forums/forum/support-groups/adults-with-cystic-fibrosis/" rel="nofollow">Adults​ ​With​ ​CF</a> Hello Bailey, good to see you&#8217;re back again. My fun thing is that I fell in love. It&#8217;s in the sundaymorning talk.					]]></content:encoded>
				
				
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				<title>Bailey Vincent started the discussion A Scary Mask Experience Yesterday : ( in the forum COVID-19 and CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/a-scary-mask-experience-yesterday/</link>
				<pubDate>Mon, 18 Oct 2021 16:06:57 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/a-scary-mask-experience-yesterday/">A Scary Mask Experience Yesterday : (</a></p> <div class="bb-content-inr-wrap"><p>I have spent most of the pandemic rolling my eyes at anyone who complained too heavily about masks because &#8216;we with CF&#8217; have had to wear in hospital more times than we could ever count. Surgeons wear them. I wear them at dance and move at really high-speed levels. And so on.</p>
<p><strong>But last night, while running an entire show with my company (where&hellip;</strong><span class="activity-read-more" id="activity-read-more-5539"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/a-scary-mask-experience-yesterday/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5517/#acomment-5522</link>
				<pubDate>Fri, 15 Oct 2021 22:25:42 -0500</pubDate>

									<content:encoded><![CDATA[<p>Phew, this one is tough. I have had to make a switch before because I didn&#8217;t like the head doctor, even though I liked the team (to me, if the doctor and I don&#8217;t gel, it&#8217;s really hard to overcome, you know?) But I&#8217;d say that if your feelings about appointments and the team is making you dread or even want to cancel appointments&#8230; it&#8217;s time&hellip;<span class="activity-read-more" id="activity-read-more-5522"><a href="https://cysticfibrosisnewstoday.com/forums/activity/p/5517/#acomment-5522" rel="nofollow"> Read more</a></span></p>
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					<a href="https://cysticfibrosisnewstoday.com/forums/members/williamryan/" data-bb-hp-profile="166" rel="nofollow">William</a> started the discussion <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/when-do-you-know-its-time-to-think-about-switching-doctors/" rel="nofollow">When do you know it&#039;s time to think about switching doctors?</a> in the forum <a href="https://cysticfibrosisnewstoday.com/forums/forums/forum/support-groups/adults-with-cystic-fibrosis/" rel="nofollow">Adults​ ​With​ ​CF</a> 

It&#8217;s not that my doctor is bad. I love my doctor and she&#8217;s been my doctor since [&hellip;]					]]></content:encoded>
				
				
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5519/#acomment-5521</link>
				<pubDate>Fri, 15 Oct 2021 22:21:06 -0500</pubDate>

									<content:encoded><![CDATA[<p>Hey Rach! It&#8217;s so nice to meet you. My name is Bailey and I moderate the forum along with my colleague Jenny, and we are both here should you need anything, or have any questions. What, if you don&#8217;t mind my asking, brought here? Look forward to getting to know you more! </p>
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					<a href="https://cysticfibrosisnewstoday.com/forums/members/rach/" data-bb-hp-profile="2637" rel="nofollow">Rach</a> became a registered member					]]></content:encoded>
				
				
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				<title>Bailey Vincent started the discussion The Quickest Hello in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/the-quickest-hello/</link>
				<pubDate>Fri, 15 Oct 2021 22:19:04 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/the-quickest-hello/">The Quickest Hello</a></p> <div class="bb-content-inr-wrap"><p>Hello forum friends! I have been off the forum for a few days, but I am still alive (hello, hi), and wanted to see how everyone has been feeling and doing.</p>
<p>I have had a rough medical week to say the least, so let&#8217;s talk happy and silly instead.</p>
<p><strong>What are three interesting or fun things that have happened to you this week? </strong></p>
<p>&nbsp;</p>
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				<title>Bailey Vincent started the discussion Real Talk: Are You Happy With Your Body? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/real-talk-are-you-happy-with-your-body/</link>
				<pubDate>Thu, 07 Oct 2021 18:31:36 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/real-talk-are-you-happy-with-your-body/">Real Talk: Are You Happy With Your Body?</a></p> <div class="bb-content-inr-wrap"><p><img src="https://cysticfibrosisnewstoday.com/forums/wp-content/uploads/2019/09/shutterstock_420804457-1000x480@2x.jpg" alt="" width="1000" height="667" /></p>
<p>Recently, our forum friend Jenny said the following:<em> &#8220;I’ve experienced some pretty significant changes to my body in the last few years, but I held onto old clothes thinking “someday, they’ll fit again.” Finally coming to peace with the idea that realistically, they’ll probably never fit again and it’s okay to let them go was very&hellip;</em><span class="activity-read-more" id="activity-read-more-5495"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/real-talk-are-you-happy-with-your-body/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion Can I Never Answer an Email Again? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/can-i-never-answer-an-email-again/</link>
				<pubDate>Wed, 06 Oct 2021 15:24:29 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/can-i-never-answer-an-email-again/">Can I Never Answer an Email Again?</a></p> <div class="bb-content-inr-wrap"><p><strong>My &#8220;day off&#8221; yesterday ended up being the day where everything I couldn&#8217;t get done on the days &#8220;on&#8221; got piled on.</strong> It hurts a lot currently to write for long periods of time (it&#8217;s sort of silly how I can dance here and there post surgery, yet typing on a laptop is what makes me miserable?), but I had no other choice because it had to get done.&hellip;<span class="activity-read-more" id="activity-read-more-5493"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/can-i-never-answer-an-email-again/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5486/#acomment-5492</link>
				<pubDate>Wed, 06 Oct 2021 14:59:50 -0500</pubDate>

									<content:encoded><![CDATA[<p>I fully support Dad bods. I felt I had to give my official endorsement of Dad bods and little else, as contribution here. You&#8217;re welcome. </p>
				<strong>In reply to</strong> -
					<a href="https://cysticfibrosisnewstoday.com/forums/members/jpaul/" data-bb-hp-profile="331" rel="nofollow">Paul met Debbie</a> replied to the discussion <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/wow-im-sorta-proud-of-myself-group-bragging-time/" rel="nofollow">Wow, I&#039;m Sorta Proud of Myself (Group Bragging Time?)</a> in the forum <a href="https://cysticfibrosisnewstoday.com/forums/forums/forum/support-groups/adults-with-cystic-fibrosis/" rel="nofollow">Adults​ ​With​ ​CF</a> Great to hear that your week went so well, despite of the surgeries, Bailey! Quite [&hellip;]					]]></content:encoded>
				
				
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5489/#acomment-5491</link>
				<pubDate>Wed, 06 Oct 2021 14:57:53 -0500</pubDate>

									<content:encoded><![CDATA[<p>I <em>also</em> should use one (my bedside stand is covered in bottles I leave out to remember to take) but I <em>also</em> don&#8217;t because I <em>also</em> find the organizing portion another &#8220;to do&#8221; on my way too &#8220;not-done&#8221; list. I am actually an otherwise very organized person &#8211; my closet, my car, my To Do list- so it&#8217;s funny how this is the straw to break my camel&#8217;s&hellip;<span class="activity-read-more" id="activity-read-more-5491"><a href="https://cysticfibrosisnewstoday.com/forums/activity/p/5489/#acomment-5491" rel="nofollow"> Read more</a></span></p>
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					<a href="https://cysticfibrosisnewstoday.com/forums/members/jennifer-livingston/" data-bb-hp-profile="630" rel="nofollow">Jenny Livingston</a> started the discussion <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/pill-organizers/" rel="nofollow">Pill organizers?</a> in the forum <a href="https://cysticfibrosisnewstoday.com/forums/forums/forum/support-groups/adults-with-cystic-fibrosis/" rel="nofollow">Adults​ ​With​ ​CF</a> 

I&#8217;m thinking of getting a pill organizer for the first time in my life. Well, that&#8217;s not entirely true &#8211; I&#8217;ve used [&hellip;]					]]></content:encoded>
				
				
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				<title>Bailey Vincent started the discussion Wow, I&#039;m Sorta Proud of Myself (Group Bragging Time?) in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/wow-im-sorta-proud-of-myself-group-bragging-time/</link>
				<pubDate>Mon, 04 Oct 2021 18:08:32 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/wow-im-sorta-proud-of-myself-group-bragging-time/">Wow, I'm Sorta Proud of Myself (Group Bragging Time?)</a></p> <div class="bb-content-inr-wrap"><p><strong>I am one day away from finishing a 7 day marathon of dance.</strong> I have had to teach, choreograph or direct dance <em>every single day </em>for a week&#8230; and tomorrow is my first &#8220;day off&#8221;. I honestly can&#8217;t believe I pulled it off less than a month after the last major surgery, and couldn&#8217;t help but post about it because&#8230; Wow, I did it!</p>
<p><strong>So, today&#8217;s&hellip;</strong><span class="activity-read-more" id="activity-read-more-5482"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/wow-im-sorta-proud-of-myself-group-bragging-time/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion Talking About Grief (and Dance and Music) in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/talking-about-grief-and-dance-and-music/</link>
				<pubDate>Fri, 01 Oct 2021 15:03:41 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/talking-about-grief-and-dance-and-music/">Talking About Grief (and Dance and Music)</a></p> <div class="bb-content-inr-wrap"><p><img src="https://cysticfibrosisnewstoday.com/forums/wp-content/uploads/2020/05/shutterstock_238674805-II-1400x480@2x-2.jpg" alt="" width="1400" height="934" /></p>
<p>What a week. Pain. Work. Work. Pain. So busy&#8230; but also always a little bit happy to be busy, I think. <strong>Despite this, we are working through some heavy topics in dance rehearsal last night. </strong></p>
<p>One of the lead characters thinks that the love of her life has been killed, and so she has a slow slow slow denial-level reckoning &#8216;on stage&#8217;,&hellip;<span class="activity-read-more" id="activity-read-more-5479"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/talking-about-grief-and-dance-and-music/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion Honesty Time: Last Good Day and Last Bad Day? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/honesty-time-last-good-day-and-last-bad-day/</link>
				<pubDate>Tue, 28 Sep 2021 15:07:32 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/honesty-time-last-good-day-and-last-bad-day/">Honesty Time: Last Good Day and Last Bad Day?</a></p> <div class="bb-content-inr-wrap"><p><strong>Yesterday was a stressful parenting day.</strong> Like&#8230;. really awful. It ended up consuming my whole morning when I had a lot of work to get done, and even worse: it just made me really tired and sad. Everything that&#8217;s going on is &#8220;normal&#8221; (teenage stuff), but man&#8230; it&#8217;s exhausting to balance all of it sometimes. The nearly full time work [dance]&hellip;<span class="activity-read-more" id="activity-read-more-5471"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/honesty-time-last-good-day-and-last-bad-day/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5457/#acomment-5470</link>
				<pubDate>Tue, 28 Sep 2021 15:00:13 -0500</pubDate>

									<content:encoded><![CDATA[<p><strong>Oh man I am definitely fighting hair loss right now and it makes me super upset!</strong> I know that&#8217;s silly and vain, but I really would rather commit to losing it all (shaving my head) or having it all&#8230; but living somewhere in the middle is hard. Know what I mean? </p>
<p><strong>I will be very honest: I started using women&#8217;s off-brand Rogaine for awhile&hellip;</strong><span class="activity-read-more" id="activity-read-more-5470"><a href="https://cysticfibrosisnewstoday.com/forums/activity/p/5457/#acomment-5470" rel="nofollow"> Read more</a></span></p>
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					<a href="https://cysticfibrosisnewstoday.com/forums/members/jennifer-livingston/" data-bb-hp-profile="630" rel="nofollow">Jenny Livingston</a> replied to the discussion <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/hair-loss-and-cf/" rel="nofollow">Hair Loss and CF</a> in the forum <a href="https://cysticfibrosisnewstoday.com/forums/forums/forum/support-groups/adults-with-cystic-fibrosis/" rel="nofollow">Adults​ ​With​ ​CF</a> Rasmus, thanks for sharing this! I&#8217;ve experienced some pretty extreme hair thinning &#8212; at times, losing literal [&hellip;]					]]></content:encoded>
				
				
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5464/#acomment-5469</link>
				<pubDate>Tue, 28 Sep 2021 14:55:46 -0500</pubDate>

									<content:encoded><![CDATA[<p>This means the world. I can&#8217;t thank you enough for writing this&#8230; I truly felt like I &#8220;hugged&#8221; every word into my chest as I read them. Thank you friend! </p>
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					<a href="https://cysticfibrosisnewstoday.com/forums/members/timb/" data-bb-hp-profile="359" rel="nofollow">Tim Blowfield</a> replied to the discussion <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/failing-but-celebrating-it/" rel="nofollow">&quot;Failing&quot;&#8230; But Celebrating It?</a> in the forum <a href="https://cysticfibrosisnewstoday.com/forums/forums/forum/support-groups/adults-with-cystic-fibrosis/" rel="nofollow">Adults​ ​With​ ​CF</a> You are amazing Bailey. We all fail to various amounts . Recognised by many philosophers and teaches in [&hellip;]					]]></content:encoded>
				
				
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5465/#acomment-5468</link>
				<pubDate>Tue, 28 Sep 2021 14:55:03 -0500</pubDate>

									<content:encoded><![CDATA[<p>Um, that is fascinating about sickle cell and malaria! I actually take a medication called Quinidine for my heart, and it was originally used to treat malaria. I&#8217;m on it full time but always think&#8230; <em>How the heck did they figure out that this also helps rare heart patterns?</em> It&#8217;s fascinating to me! (How many times can I say fascinating? haha) </p>
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					<a href="https://cysticfibrosisnewstoday.com/forums/members/timb/" data-bb-hp-profile="359" rel="nofollow">Tim Blowfield</a> replied to the discussion <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/feeling-grateful/" rel="nofollow">Feeling grateful</a> in the forum <a href="https://cysticfibrosisnewstoday.com/forums/forums/forum/support-groups/adults-with-cystic-fibrosis/" rel="nofollow">Adults​ ​With​ ​CF</a> Thanks Jenny and Paul,

Your discussion of what has happened post starting trikafta/kaftrio is very important. May be CF [&hellip;]					]]></content:encoded>
				
				
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5466/#acomment-5467</link>
				<pubDate>Tue, 28 Sep 2021 14:53:50 -0500</pubDate>

									<content:encoded><![CDATA[<p>Hey Andy. My name is Bailey and I&#8217;m one of the forum moderators here, along with my friend Jenny (who you&#8217;ll meet soon enough!) We are here to support you, answer questions should you have them, and post topics if you want to dive in and chat. Or, if you have any of your own questions or curiosities, please post your own or ask them here-&hellip;<span class="activity-read-more" id="activity-read-more-5467"><a href="https://cysticfibrosisnewstoday.com/forums/activity/p/5466/#acomment-5467" rel="nofollow"> Read more</a></span></p>
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					<a href="https://cysticfibrosisnewstoday.com/forums/members/andyjackson/" data-bb-hp-profile="2604" rel="nofollow">Andy Jackson</a> became a registered member					]]></content:encoded>
				
				
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				<title>Bailey Vincent started the discussion CF Clinic Update and Weird RBCs in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/cf-clinic-update-and-weird-rbcs/</link>
				<pubDate>Sat, 25 Sep 2021 00:00:17 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/cf-clinic-update-and-weird-rbcs/">CF Clinic Update and Weird RBCs</a></p> <div class="bb-content-inr-wrap"><p><strong>I was <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/a-balancing-act/" rel="nofollow">replying to our dear Jenny here</a> about her recent &#8220;in person&#8221; CF clinic visit, and it made me realize I hadn&#8217;t yet posted about mine!</strong> It was last week, so I was only a week and a few days out from neck surgery, but I documented pieces of it here in a little silly video.</p>
<p>All in all, it went really well (mostly in part to my amazing team).&hellip;<span class="activity-read-more" id="activity-read-more-5448"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/cf-clinic-update-and-weird-rbcs/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5440/#acomment-5443</link>
				<pubDate>Thu, 23 Sep 2021 15:46:53 -0500</pubDate>

									<content:encoded><![CDATA[<p><strong>You and I are definitely on the same page lately, Jenny.</strong> I am definitely in the physical versus mental space right now, and I think one of the &#8220;worst&#8221; things about my brain (lol) and my ability to function is that <em>my physical sometimes IS my mental health</em>? And by that I mean: <strong>I think I am addicted to the endorphins I get from dancing,&hellip;</strong><span class="activity-read-more" id="activity-read-more-5443"><a href="https://cysticfibrosisnewstoday.com/forums/activity/p/5440/#acomment-5443" rel="nofollow"> Read more</a></span></p>
				<strong>In reply to</strong> -
					<a href="https://cysticfibrosisnewstoday.com/forums/members/jennifer-livingston/" data-bb-hp-profile="630" rel="nofollow">Jenny Livingston</a> started the discussion <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/a-balancing-act/" rel="nofollow">A balancing act</a> in the forum <a href="https://cysticfibrosisnewstoday.com/forums/forums/forum/support-groups/adults-with-cystic-fibrosis/" rel="nofollow">Adults​ ​With​ ​CF</a> I have a clinic appointment tomorrow (in person, with PFTs) to check in with my doctor regarding the adjustment to my [&hellip;]					]]></content:encoded>
				
				
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				<title>Bailey Vincent started the discussion &#34;Failing&#34;... But Celebrating It? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/failing-but-celebrating-it/</link>
				<pubDate>Thu, 23 Sep 2021 15:38:57 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/failing-but-celebrating-it/">"Failing"... But Celebrating It?</a></p> <div class="bb-content-inr-wrap"><p><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/real-thoughts-no-lectures-cost-vs-reward/" rel="nofollow">I wrote about demand versus reward yesterday</a> on the forum, and about a big dance project coming up, and it made think about the first big hurdle I&#8217;m facing: Completing my company&#8217;s show before this new dance contract begins.</p>
<p>Here&#8217;s why that&#8217;s hard: <strong>I can&#8217;t dance for about 4 more weeks, give or take&#8230; which leaves me only about 2 weeks to get&hellip;</strong><span class="activity-read-more" id="activity-read-more-5442"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/failing-but-celebrating-it/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion Real Thoughts, No Lectures: &#34;Cost Vs Reward&#34;? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/real-thoughts-no-lectures-cost-vs-reward/</link>
				<pubDate>Wed, 22 Sep 2021 16:01:05 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/real-thoughts-no-lectures-cost-vs-reward/">Real Thoughts, No Lectures: "Cost Vs Reward"?</a></p> <div class="bb-content-inr-wrap"><p>Yesterday I <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/that-time-where-i-forced-you-to-complain/" rel="nofollow">posted about complaining</a> (and the weird relief in complaining sometimes?), and then I blasted the music of a composer I&#8217;ve found to simmer down: Oliver Davis. (<em>Hot Tip: Blast &#8220;Dance I: First Movement&#8221; and see how it makes you feel. I&#8217;d be so curious!)</em> Then, I moved on with my day.</p>
<p>But<strong> I&#8217;m going to be honest&#8230; It&#8217;s been hard to&hellip;</strong><span class="activity-read-more" id="activity-read-more-5437"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/real-thoughts-no-lectures-cost-vs-reward/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion That Time Where I Forced You To Complain...... in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/that-time-where-i-forced-you-to-complain/</link>
				<pubDate>Tue, 21 Sep 2021 15:29:57 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/that-time-where-i-forced-you-to-complain/">That Time Where I Forced You To Complain......</a></p> <div class="bb-content-inr-wrap"><p><strong>I typed up an entire post this morning&#8230; and then accidentally deleted it. </strong></p>
<p>Since typing hurts so much right now as I&#8217;m recovering from surgery (the &#8220;looking down&#8221; or &#8220;crunching my neck&#8221; is what hurts), this feels much more dramatic to me than it would to anyone else. I text our beloved Jenny to complain&#8230; and how here I am. Grumpy-faced&hellip;<span class="activity-read-more" id="activity-read-more-5433"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/that-time-where-i-forced-you-to-complain/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion Let&#039;s Dream BIG Together.... in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/lets-dream-big-together/</link>
				<pubDate>Mon, 20 Sep 2021 17:57:56 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/lets-dream-big-together/">Let's Dream BIG Together....</a></p> <div class="bb-content-inr-wrap"><p><strong>Yesterday was truly so special. </strong>I had my long rehearsal day with my Company (Sunday is basically my biggest work day of the week) from about 12:30 to 9 (although last night I didn&#8217;t get home until 11 pm- eek!) We run through dances, set things, and work with various age groups nonstop throughout the evening.</p>
<p><strong>However, last night we had a&hellip;</strong><span class="activity-read-more" id="activity-read-more-5430"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/lets-dream-big-together/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion Happy Birthday To Me and... A Quick, Honest Mental Struggle With Age (Eek) in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/happy-birthday-to-me-and-a-quick-honest-mental-struggle-with-age-eek/</link>
				<pubDate>Fri, 17 Sep 2021 20:20:31 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/happy-birthday-to-me-and-a-quick-honest-mental-struggle-with-age-eek/">Happy Birthday To Me and... A Quick, Honest Mental Struggle With Age (Eek)</a></p> <div class="bb-content-inr-wrap"><p><strong>Today is my birthday and I definitely can&#8217;t believe how old I am.</strong> I&#8217;m not sure if it&#8217;s because I feel enormously younger and cannot fathom my current age (it feels like a trick?) I am almost <em>embarrassed</em> of my age, right now, because it feels such an ill fit for how I feel inside.</p>
<p>Then again, my Dad asked me if I feel &#8220;105&#8221; today and I said&hellip;<span class="activity-read-more" id="activity-read-more-5424"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/happy-birthday-to-me-and-a-quick-honest-mental-struggle-with-age-eek/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5411/#acomment-5422</link>
				<pubDate>Fri, 17 Sep 2021 20:12:31 -0500</pubDate>

									<content:encoded><![CDATA[<p>I WANT to see a chiropractor so badly, but since they&#8217;re not covered by insurance, I can&#8217;t afford : ( </p>
<p>I truly wish that was something that I could do, because many of the dancers I know (who dance to the level and time that I do) get regular massages and Chiro-work to stay functional, and many super-sick people (to the level that we are) go,&hellip;<span class="activity-read-more" id="activity-read-more-5422"><a href="https://cysticfibrosisnewstoday.com/forums/activity/p/5411/#acomment-5422" rel="nofollow"> Read more</a></span></p>
				<strong>In reply to</strong> -
					<a href="https://cysticfibrosisnewstoday.com/forums/members/jennifer-livingston/" data-bb-hp-profile="630" rel="nofollow">Jenny Livingston</a> started the discussion <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/chiropractor/" rel="nofollow">Chiropractor?</a> in the forum <a href="https://cysticfibrosisnewstoday.com/forums/forums/forum/support-groups/adults-with-cystic-fibrosis/" rel="nofollow">Adults​ ​With​ ​CF</a> 

Today&#8217;s question is brief and straight to the point.

<em>Do you see a chiropractor? If so, what do you feel the [&hellip;]</em>					]]></content:encoded>
				
				
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				<title>Bailey Vincent started the discussion Ballerina Wisdom = Sick People Advice? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/ballerina-wisdom-sick-people-advice/</link>
				<pubDate>Thu, 16 Sep 2021 14:31:43 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/ballerina-wisdom-sick-people-advice/">Ballerina Wisdom = Sick People Advice?</a></p> <div class="bb-content-inr-wrap"><p><img src="https://cysticfibrosisnewstoday.com/forums/wp-content/uploads/2019/09/shutterstock_220041373-1400x480@2x-2.jpg" alt="" width="1400" height="924" /></p>
<p><a target='_blank' href="https://www.byrdie.com/tiler-peck-ballerina-wellness-essentials-5198233" rel="nofollow">I read this article the other day</a> about Tiler Peck (a top tier, rock star ballerina, if you don’t know her yet), and was really blown away by how openly she talked about “saving her legs” for dance.</p>
<p>Most dancers and athletes I read about talk only about how “over achieving” they are. <em>If they’re not performing or playing a game, they’re&hellip;</em><span class="activity-read-more" id="activity-read-more-5413"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/ballerina-wisdom-sick-people-advice/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5405/#acomment-5407</link>
				<pubDate>Tue, 14 Sep 2021 22:56:02 -0500</pubDate>

									<content:encoded><![CDATA[<p>Oh my goodness, Dr Hoh&#8230; Thank you so much for this insight and for sharing your story! (And for this prompt, which I truly appreciate and feel humbled by) </p>
<p>I wish had a really thought-out response to this, because I cherish knowing more about you and your family, but I&#8217;ll be super honest when I say that&#8230; I personally really struggle with&hellip;<span class="activity-read-more" id="activity-read-more-5407"><a href="https://cysticfibrosisnewstoday.com/forums/activity/p/5405/#acomment-5407" rel="nofollow"> Read more</a></span></p>
				<strong>In reply to</strong> -
					<a href="https://cysticfibrosisnewstoday.com/forums/members/drwill/" data-bb-hp-profile="1712" rel="nofollow">w-hoh</a> replied to the discussion <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/monday-shoutout-the-capable-disabled/" rel="nofollow">Monday Shoutout: The Capable Disabled</a> in the forum <a href="https://cysticfibrosisnewstoday.com/forums/forums/forum/support-groups/adults-with-cystic-fibrosis/" rel="nofollow">Adults​ ​With​ ​CF</a> This capable disabled individual is a physician who became disabled due to a spinal cord injury in the US [&hellip;]					]]></content:encoded>
				
				
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				<title>Bailey Vincent started the discussion Warning: Ranting About Docs and Accommodations and Telehealth in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/warning-ranting-about-docs-and-accommodations-and-telehealth/</link>
				<pubDate>Tue, 14 Sep 2021 22:44:58 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/warning-ranting-about-docs-and-accommodations-and-telehealth/">Warning: Ranting About Docs and Accommodations and Telehealth</a></p> <div class="bb-content-inr-wrap"><p>I’m going to rant for a second.</p>
<p>I know that doctors need to see us in person for a lot of things. I know that there is benefit and merit to appointments that aren’t strictly virtual. But lately, I sort of want to ask: <em>What happened to doctors being more accommodating?</em></p>
<p>I have had multiple doctors tell me I can only come in-person now and &#8216;we&hellip;<span class="activity-read-more" id="activity-read-more-5406"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/warning-ranting-about-docs-and-accommodations-and-telehealth/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion Hi and Hello and I Am Back in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/hi-and-hello-and-i-am-back/</link>
				<pubDate>Mon, 13 Sep 2021 15:31:54 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/hi-and-hello-and-i-am-back/">Hi and Hello and I Am Back</a></p> <div class="bb-content-inr-wrap"><p>Hey forum friends! I am back! <strong>I took last week off while beginning recovery from <a target='_blank' href="https://www.instagram.com/p/CTaAa96rHot/" rel="nofollow">cervical spine surgery</a></strong>, and left it all to our amazing Jenny so… THANK YOU Jenny, as always!</p>
<p>I know this is a dorky way of diving back in with everyone but… <strong>How the heck are you?</strong> (I&#8217;ve missed seeing my regular friends here!)</p>
<p><em>I’d love to know how you are,&hellip;</em><span class="activity-read-more" id="activity-read-more-5399"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/hi-and-hello-and-i-am-back/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5340/#acomment-5364</link>
				<pubDate>Thu, 02 Sep 2021 13:17:18 -0500</pubDate>

									<content:encoded><![CDATA[<p>I totally missed your birthday Jenny!!!! Better later than never? </p>
<p><strong>First, thanks to Rusty pointing out you&#8217;re a Virgo</strong>&#8230; It reminds me how we are both Virgos, lol (still not surprising). </p>
<p><strong>Second: What is your all time favorite flavor of cake?</strong></p>
<p><strong>Third: I think the secret to life is empathy.</strong> If we all learned to feel as much for others as we do&hellip;<span class="activity-read-more" id="activity-read-more-5364"><a href="https://cysticfibrosisnewstoday.com/forums/activity/p/5340/#acomment-5364" rel="nofollow"> Read more</a></span></p>
				<strong>In reply to</strong> -
					<a href="https://cysticfibrosisnewstoday.com/forums/members/jennifer-livingston/" data-bb-hp-profile="630" rel="nofollow">Jenny Livingston</a> started the discussion <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/the-secret-of-life/" rel="nofollow">The secret of life</a> in the forum <a href="https://cysticfibrosisnewstoday.com/forums/forums/forum/support-groups/adults-with-cystic-fibrosis/" rel="nofollow">Adults​ ​With​ ​CF</a> Today is my birthday, which I say for two reasons: 

1) I love birthdays and feel that every single one is [&hellip;]					]]></content:encoded>
				
				
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5347/#acomment-5363</link>
				<pubDate>Thu, 02 Sep 2021 13:14:38 -0500</pubDate>

									<content:encoded><![CDATA[<p>Paul, I&#8217;m a little behind on reading and replying to your beautiful Sunday post (<em>who am I?</em> Normally it&#8217;s the first thing I pounce to read- playing catch up!), but I wanted to quickly comment to say thank you for writing this one. The imagery. The pause. The hopefulness. The practicality. It all resonated and read like prose. </p>
				<strong>In reply to</strong> -
					<a href="https://cysticfibrosisnewstoday.com/forums/members/jpaul/" data-bb-hp-profile="331" rel="nofollow">Paul met Debbie</a> started the discussion <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/sunday-morning-26/" rel="nofollow">Sunday Morning (26)</a> in the forum <a href="https://cysticfibrosisnewstoday.com/forums/forums/forum/support-groups/adults-with-cystic-fibrosis/" rel="nofollow">Adults​ ​With​ ​CF</a> Lately I have been watching some YouTube video’s about mountain climbing. I don’t know why the algorithm brought [&hellip;]					]]></content:encoded>
				
				
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5357/#acomment-5362</link>
				<pubDate>Thu, 02 Sep 2021 13:13:03 -0500</pubDate>

									<content:encoded><![CDATA[<p><em>I love your Win Posts, Jenny!</em> I already said what I&#8217;m about to say in a post from a couple of days ago, but I basically wrote an insane amount and choreographed and insane amount in a week, and even though it was also sort of psycho and awful (?), I can&#8217;t help but feel like, &#8220;Wow. I did that&#8221;. </p>
<p>Also, <strong>my girls started school a few days ago&hellip;</strong><span class="activity-read-more" id="activity-read-more-5362"><a href="https://cysticfibrosisnewstoday.com/forums/activity/p/5357/#acomment-5362" rel="nofollow"> Read more</a></span></p>
				<strong>In reply to</strong> -
					<a href="https://cysticfibrosisnewstoday.com/forums/members/jennifer-livingston/" data-bb-hp-profile="630" rel="nofollow">Jenny Livingston</a> started the discussion <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/__trashed/" rel="nofollow">Weekly wins</a> in the forum <a href="https://cysticfibrosisnewstoday.com/forums/forums/forum/support-groups/adults-with-cystic-fibrosis/" rel="nofollow">Adults​ ​With​ ​CF</a> I typed this out yesterday, but something happened and my post was eaten. Technology is both amazing and incredibly [&hellip;]					]]></content:encoded>
				
				
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				<title>Bailey Vincent started the discussion Merde: Poop and Good Luck in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/merde-poop-and-good-luck/</link>
				<pubDate>Thu, 02 Sep 2021 13:01:21 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/merde-poop-and-good-luck/">Merde: Poop and Good Luck</a></p> <div class="bb-content-inr-wrap"><p><strong>What is your favorite way to wish someone good luck?</strong></p>
<p><strong>In ballet, we often say “merde” (because good luck is actually considered bad luck), even though it actually means sh*t in French.</strong> I love talking about poop any chance I can get (we all do it!) In other areas of theater we say “break a leg” or other variations that avoid actually saying&hellip;<span class="activity-read-more" id="activity-read-more-5361"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/merde-poop-and-good-luck/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion Why Is It So Hard To Take Time To Recover? (Is This Just Me?) in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/why-is-it-so-hard-to-take-time-to-recover-is-this-just-me/</link>
				<pubDate>Wed, 01 Sep 2021 17:36:54 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/why-is-it-so-hard-to-take-time-to-recover-is-this-just-me/">Why Is It So Hard To Take Time To Recover? (Is This Just Me?)</a></p> <div class="bb-content-inr-wrap"><p><strong>In one week, I have choreographed over 33 minutes of dance.</strong> That&#8217;s 60+ people orchestrated in fully comprehensive, every-second-accounted-for dancing (in my head), so I can continue our Fall show preparations, even while recovering from the surgery that&#8217;s to come in a few days.</p>
<p>I won&#8217;t be able to &#8220;demonstrate&#8221; movements when I come out&hellip;<span class="activity-read-more" id="activity-read-more-5355"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/why-is-it-so-hard-to-take-time-to-recover-is-this-just-me/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion Medical Terms: Let’s Do This in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/medical-terms-lets-do-this/</link>
				<pubDate>Mon, 30 Aug 2021 16:36:17 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/medical-terms-lets-do-this/">Medical Terms: Let’s Do This</a></p> <div class="bb-content-inr-wrap"><p><img src="https://cysticfibrosisnewstoday.com/forums/wp-content/uploads/2019/11/shutterstock_318060617-1000x480@2x.jpg" alt="" width="1000" height="668" /></p>
<p>Today’s question is quick and simple, but also <em>not</em> considering how complicated medical terminology can be to pronounce:</p>
<p><strong>What is your favorite medical word of all time to say?</strong></p>
<p>I feel like we all have that one antibiotic or term we overuse just a little bit tooooo much because we like how it feels. Or maybe you have a word that you&hellip;<span class="activity-read-more" id="activity-read-more-5349"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/medical-terms-lets-do-this/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion HELP Me Relax. I am Insane. in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/help-me-relax-i-am-insane/</link>
				<pubDate>Wed, 25 Aug 2021 14:15:48 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/help-me-relax-i-am-insane/">HELP Me Relax. I am Insane.</a></p> <div class="bb-content-inr-wrap"><p><a target='_blank' href="https://www.instagram.com/p/CSxx9HZsn5O/" rel="nofollow">Last week</a> was weird and lovely at the same time. I was in pain, which was awful (not how someone wants to spend their big “week off”). I was sick- ended up coming down with some sort of bug-fever, and of course worried it&#8217;s because I&#8217;ve been doing more and being a little too lax around friends without masks, and thus brought it upon myself.&hellip;<span class="activity-read-more" id="activity-read-more-5337"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/help-me-relax-i-am-insane/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion “Mucus: The Musical”… and Other Bad Ideas in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/mucus-the-musical-and-other-bad-ideas/</link>
				<pubDate>Tue, 24 Aug 2021 21:48:09 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/mucus-the-musical-and-other-bad-ideas/">“Mucus: The Musical”… and Other Bad Ideas</a></p> <div class="bb-content-inr-wrap"><p>Yesterday I asked <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/biopic-of-your-life-who-would-you-be/" rel="nofollow">who would be you in the movie of your life</a>, and today I’m doing one better. Or rather, musical theater &#8220;nerdier&#8221;…</p>
<p><strong>If you were to make a Broadway musical of your life, who would write the music and what would it be called?</strong></p>
<p>I am obviously a bit of a theater geek, but I also love musicals that are based on pre-existing artists&hellip;<span class="activity-read-more" id="activity-read-more-5335"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/mucus-the-musical-and-other-bad-ideas/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion Biopic of Your Life: Who Would YOU Be? in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/biopic-of-your-life-who-would-you-be/</link>
				<pubDate>Mon, 23 Aug 2021 17:55:52 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/biopic-of-your-life-who-would-you-be/">Biopic of Your Life: Who Would YOU Be?</a></p> <div class="bb-content-inr-wrap"><p>&nbsp;</p>
<p><img src="https://cysticfibrosisnewstoday.com/forums/wp-content/uploads/2020/06/shutterstock_280874126-1400x480@2x.jpg" alt="" width="1400" height="960" /></p>
<p>I was at the beach <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/travel-thoughts-virus-getting-worse/" rel="nofollow">last week</a> and trying to stay safe, and healthy, but also keep things “light”. So here was a very light but very fun question to consider:</p>
<p><strong>Who would play you in the biopic of your life and who would direct?</strong></p>
<p>(I care more about the directing part than the acting part, haha.)</p>
<p><strong>Would you let your sickness be a&hellip;</strong><span class="activity-read-more" id="activity-read-more-5322"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/biopic-of-your-life-who-would-you-be/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5275/#acomment-5301</link>
				<pubDate>Wed, 18 Aug 2021 19:10:02 -0500</pubDate>

									<content:encoded><![CDATA[<p>I love these win posts! We should continue them every week? I&#8217;ll let you take the lead, Jenny. haha. You &#8220;win&#8221; at the winning. </p>
<p>My youngest just got her second vaccine! (For those who don&#8217;t know, Jenny and I have daughters around the same tween age.) Surreal and amazing! How is she feeling so far? </p>
<p>I need to steal some of your birthday&hellip;<span class="activity-read-more" id="activity-read-more-5301"><a href="https://cysticfibrosisnewstoday.com/forums/activity/p/5275/#acomment-5301" rel="nofollow"> Read more</a></span></p>
				<strong>In reply to</strong> -
					<a href="https://cysticfibrosisnewstoday.com/forums/members/jennifer-livingston/" data-bb-hp-profile="630" rel="nofollow">Jenny Livingston</a> started the discussion <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/weekly-wins-4/" rel="nofollow">Weekly Wins</a> in the forum <a href="https://cysticfibrosisnewstoday.com/forums/forums/forum/community-spotlights/wcw/" rel="nofollow">Our People</a> <strong>Tell me, in the past week or so, what is a “win” you’ve experienced? Related to CF or other areas of life; big or small; silly or [&hellip;]</strong>					]]></content:encoded>
				
				
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5286/#acomment-5300</link>
				<pubDate>Wed, 18 Aug 2021 19:05:36 -0500</pubDate>

									<content:encoded><![CDATA[<p>We. Love. Kristin. </p>
<p>I am so so so happy for her that she&#8217;s now writing this column. A tremendous poet and person. </p>
				<strong>In reply to</strong> -
					<a href="https://cysticfibrosisnewstoday.com/forums/members/jennifer-livingston/" data-bb-hp-profile="630" rel="nofollow">Jenny Livingston</a> started the discussion <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/monday-shoutout-kristin-entler-cf-news-today-columnist/" rel="nofollow">Monday Shoutout: Kristin Entler, CF News Today Columnist</a> in the forum <a href="https://cysticfibrosisnewstoday.com/forums/forums/forum/support-groups/adults-with-cystic-fibrosis/" rel="nofollow">Adults​ ​With​ ​CF</a> Shout Out to Kristin Entler, our CF News Today [&hellip;]					]]></content:encoded>
				
				
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5289/#acomment-5299</link>
				<pubDate>Wed, 18 Aug 2021 19:05:07 -0500</pubDate>

									<content:encoded><![CDATA[<p>Wow. Miracle is truly the word! I am applauding you from afar, Paul! </p>
<p>I can&#8217;t even imagine. Well, I sort of can because my cough has enormously improved since I&#8217;ve been more &#8220;locked down&#8221; over the last year and everyone is wearing masks (I haven&#8217;t gotten sick as frequently, basically)- but just&#8230; WOW. Since so much of my illness is&hellip;<span class="activity-read-more" id="activity-read-more-5299"><a href="https://cysticfibrosisnewstoday.com/forums/activity/p/5289/#acomment-5299" rel="nofollow"> Read more</a></span></p>
				<strong>In reply to</strong> -
					<a href="https://cysticfibrosisnewstoday.com/forums/members/jpaul/" data-bb-hp-profile="331" rel="nofollow">Paul met Debbie</a> replied to the discussion <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/weekly-wins-4/" rel="nofollow">Weekly Wins</a> in the forum <a href="https://cysticfibrosisnewstoday.com/forums/forums/forum/community-spotlights/wcw/" rel="nofollow">Our People</a> I am very happy about your wins, we can never overshare the positive I think.

For me, I already shared this in a broader setting in [&hellip;]					]]></content:encoded>
				
				
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				<title>Bailey Vincent posted a new activity comment</title>
				<link>https://cysticfibrosisnewstoday.com/forums/activity/p/5292/#acomment-5298</link>
				<pubDate>Wed, 18 Aug 2021 19:03:02 -0500</pubDate>

									<content:encoded><![CDATA[<p>This is beautiful and good to know</p>
				<strong>In reply to</strong> -
					<a href="https://cysticfibrosisnewstoday.com/forums/members/jennifer-livingston/" data-bb-hp-profile="630" rel="nofollow">Jenny Livingston</a> replied to the discussion <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/getting-covid-twice-case-studies-thoughts/" rel="nofollow">Getting Covid Twice (Case Studies, Thoughts)</a> in the forum <a href="https://cysticfibrosisnewstoday.com/forums/forums/forum/coronavirus-covid-19-and-cf/" rel="nofollow">COVID-19 and CF</a> I now know of a more breakthrough cases than I count on one hand. These are all people I [&hellip;]					]]></content:encoded>
				
				
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				<title>Bailey Vincent started the discussion Predictions: Looking Ahead With Worry in the forum COVID-19 and CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/predictions-looking-ahead-with-worry/</link>
				<pubDate>Wed, 18 Aug 2021 19:00:48 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/predictions-looking-ahead-with-worry/">Predictions: Looking Ahead With Worry</a></p> <div class="bb-content-inr-wrap"><p>I have been posting a bit more about Covid this week on the forum (see <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/getting-covid-twice-case-studies-thoughts/" rel="nofollow">here</a> and <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/travel-thoughts-virus-getting-worse/" rel="nofollow">here</a>), and will be shifting to other <em>fun-in-the-sun</em> topics next week, don’t worry… but one more question to round out the week:</p>
<p><strong>Do you think things will change in terms of virus protocols between now and this fall?</strong></p>
<p><strong>What are your predictions for the next couple of&hellip;</strong><span class="activity-read-more" id="activity-read-more-5297"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/predictions-looking-ahead-with-worry/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion Travel Thoughts: Virus Getting Worse? in the forum COVID-19 and CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/travel-thoughts-virus-getting-worse/</link>
				<pubDate>Tue, 17 Aug 2021 18:37:17 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/travel-thoughts-virus-getting-worse/">Travel Thoughts: Virus Getting Worse?</a></p> <div class="bb-content-inr-wrap"><p><img src="https://cysticfibrosisnewstoday.com/forums/wp-content/uploads/2019/09/shutterstock_418734649.jpg" alt="" width="1000" height="700" /></p>
<p><strong>My family is currently on a road trip and trying to be our safest.</strong></p>
<p>It is weird traveling during a pandemic… but especially when it’s starting to “pick back up”, so to speak. It had truly felt like the light was beginning to be at the end of the tunnel, and that committing to this little budget hideaway beach stay wasn’t an&hellip;<span class="activity-read-more" id="activity-read-more-5290"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/travel-thoughts-virus-getting-worse/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion Getting Covid Twice (Case Studies, Thoughts) in the forum COVID-19 and CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/getting-covid-twice-case-studies-thoughts/</link>
				<pubDate>Mon, 16 Aug 2021 21:11:58 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/getting-covid-twice-case-studies-thoughts/">Getting Covid Twice (Case Studies, Thoughts)</a></p> <div class="bb-content-inr-wrap"><p><strong>I posted awhile back about the instances of immunocompromised patients contracting Covid after being doubly vaccinated</strong>, and said I would go into more information… and then didn’t.</p>
<p>And to be honest, I’m not a scientist or a doctor, so I probably should not be the person dolling out wisdom or data on the subject. Still, I thought that &hellip;<span class="activity-read-more" id="activity-read-more-5287"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/getting-covid-twice-case-studies-thoughts/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion Serious Question, Silly Answers in the forum Adults​ ​With​ ​CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/serious-question-silly-answers/</link>
				<pubDate>Wed, 11 Aug 2021 14:29:44 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/serious-question-silly-answers/">Serious Question, Silly Answers</a></p> <div class="bb-content-inr-wrap"><p>I saw the following question posted on someone&#8217;s Facebook recently, and thought it was hilarious to consider. (They were someone without health problems, to be fair, so &#8220;near death&#8221; experiences have probably been a lot less looming at times.)</p>
<p>Even so, I figured it would be rather funny to ponder here:</p>
<p><strong>If you died tomorrow, what would loved&hellip;</strong><span class="activity-read-more" id="activity-read-more-5254"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/serious-question-silly-answers/" rel="nofollow"> Read more</a></span></p>
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				<title>Bailey Vincent started the discussion My New Healthy Habits (Sharing Time!) in the forum COVID-19 and CF</title>
				<link>https://cysticfibrosisnewstoday.com/forums/forums/topic/my-new-healthy-habits-sharing-time/</link>
				<pubDate>Mon, 09 Aug 2021 19:05:54 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/my-new-healthy-habits-sharing-time/">My New Healthy Habits (Sharing Time!)</a></p> <div class="bb-content-inr-wrap"><p>Last week I posted about <a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/backwards-in-time-eek/" rel="nofollow">setting &#8220;best intentions&#8221;</a> for healthy habits but then falling short, and I thought it might be beneficial to share my health habits goals right now&#8230; so you can share yours?</p>
<p>I&#8217;d love to know what goals you&#8217;ve set for yourself lately and how they&#8217;re going so far!</p>
<p><strong>MY HEALTHY HABITS GOALS Right Now</strong></p>
<p>* To wake up&hellip;<span class="activity-read-more" id="activity-read-more-5242"><a href="https://cysticfibrosisnewstoday.com/forums/forums/topic/my-new-healthy-habits-sharing-time/" rel="nofollow"> Read more</a></span></p>
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